Support Groups for Parents

Clubs for families with multiples are an invaluable resource for parents of twins, triplets or more. Connect with a local club in your area for support, advice, friendship and equipment swapping.

Support group for parents of children with Aicardi syndrome.

Information about children with facial differences, including those with microtia, Pierre Robin Syndrome, Crouzon Syndrome, Craniosynostosis and Craniometaphyseal Dysplasia.

The Al-Anon Family Groups offers support for families, teenagers and friends of alcoholics. Includes a list of meetings and a description of the twelve steps.

CLASS provides support for parents of children with liver disease and transplantation. With a library of information about childhood liver disease, liver transplants, medications, personal experiences and a discussion forum.

Connect with another family in your area that has a child with Cornelia de Lange Syndrome through the Cornelia de Lange Syndrome Foundation.

A world-wide collection of support groups and organizations for parents of children with epilepsy.

Support group for parents of children with congenital heart disease,

An unmoderated email discussion list for people with hydrocephalus, their friends and family members, health care professionals and anyone else with an interest in hydrocephalus, so that they can share information and support in dealing with hydrocephalus.

Information about living with Klinefelter Syndrome and links to support groups and email lists.

The Make A Wish Foundation grants wishes for children with life threatening illnesses. Includes information about wish referral and finding your local chapter.

Offers support to parents through a national Parent-to-Parent organization for parents with disabilities and chronic health problems.

A support group for single parents, with practicle tips on coping and grieving, communicating with children, child discipline, visitation, never-married parenting situations, legal issues, and social considerations.

Information and support for parents of children with Prune Belly Syndrome, which is also called Eagle-Barrett Syndrome. This rare condition causes children (mostly males) to have deficient abdominal muscles, urinary tract abnormalities and undescended testes.

Search the National Organization for Rare Disorders organizational database to find support groups for many rare diseases affecting children.

Information and resources about children with a cleft lip and/or palate, including the advice of otolaryngologists, speech and language development, genetics and what to expect after your repair.

Everything you need to know about Spinal Muscular Atrophy, including how to cope with a new diagnosis, plus message boards and information about research and fundraising for families of children with SMA.

Information, support and resources about vascular birthmarks, including hemangiomas, port wine stains and venous malformations. With treatment options and before and after pictures.